EXPLORING ARTS-BASED METHODS IN UNPAID CAREGIVING CONTEXTS: A SCOPING REVIEW
##plugins.themes.bootstrap3.article.main##
Abstract
Introduction:
Unpaid caregiving plays a crucial role in supporting older adults, requiring innovative approaches to understand and enhance caregivers' experiences. Research Objectives: As a response, this scoping review investigates the application of arts-based methods in understanding the caregiving experience, as well as the advantages and limitations of these methods in providing care to diverse populations. Methodology: Building on Arksey and O’Malley's framework, our methodology draws from the Joanna Briggs Institute approach. Eligibility criteria encompassed peer-reviewed publications in English from 2007 to 2022, focusing on unpaid caregivers, arts-based methods, and caregiving experiences. Six comprehensive databases were queried, with the initial searches yielding 761 articles. Full text screening of 66 papers resulted in 19 papers for inclusion in the scoping review. Results: Analysis of the literature revealed the multifaceted applications of arts-based methods in understanding and supporting unpaid caregivers. These encompassed a wide range of creative techniques, such as visual arts, photo elicitation, storytelling, and performance – which provided insights into the emotional, psychological, and social dimensions of caregiving. Findings highlighted the potential for arts-based methods to enhance caregiver well-being, foster self-reflection and self-care, and promote dialogue. Nonetheless, there were notable gaps. Racial and ethnic diversity was often neglected in the studies (addressed in 3 of 19), underscoring the necessity for tailored interventions and methodological considerations for diverse populations. Importantly, dementia caregiving received substantial attention (12 of 19). Final Considerations: This scoping review highlights the growing interest in integrating arts-based methods into caregiving research and interventions amongst qualitative and mixed methods approaches. By mapping out the landscape of existing literature, this review underscores the need for further exploration and methodological refinement to harness the full potential of creative techniques in advancing our understanding of unpaid caregivers' lived experiences. Arts-based approaches hold promise in providing a nuanced and holistic perspective on unpaid caregiving experiences.
##plugins.themes.bootstrap3.article.details##
How to Cite
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
openAccess
Baker, F. A., & Yeates, S. (2018). Carers’ experiences of group therapeutic songwriting: An interpretive phenomenological analysis. British Journal of Music Therapy, 32(1), 8–17. https://doi.org/10.1177/1359457517728914
Barone, T., & Eisner, E. W. (2012). Arts based research. In Arts Based Research. https://doi.org/10.4135/9781452230627
Bourne, P., Camic, P., & Crutch, S. (2020). Psychosocial outcomes of dyadic arts interventions for people with a dementia and their informal caregivers: a systematic review. Health & Social Care in the Community, 29(6), 1632-1649. https://doi.org/10.1111/hsc.13267
Broxson, J., & Feliciano, L. (2020). Understanding the impacts of caregiver stress. Professional Case Management, 25(4), 213-219. https:doi.org/10.1097/NCM.0000000000000414
Clark, I. N., Tamplin, J. D., & Baker, F. A. (2018). Community-Dwelling People Living With Dementia and Their Family Caregivers Experience Enhanced Relationships and Feelings of Well-Being Following Therapeutic Group Singing: A Qualitative Thematic Analysis. Frontiers in Psychology, 9(July), 1–13. https://doi.org/10.3389/fpsyg.2018.01332
Cristea, M., Noja, G. G., ?tefea, P., & Sala, A. L. (2020). The impact of population aging and public health support on EU labor markets. International Journal of Environmental Research and Public Health, 17(4), 1439. https://doi.org/10.3390/ijerph17041439
Davidson, J. W., & Almeida, R. A. (2014). An exploratory study of the impact of group singing activities on lucidity, energy, focus, mood and relaxation for persons with dementia and their caregivers. Psychology of Well-Being, 4(1), 1–13. https://doi.org/10.1186/s13612-014-0024-5
del-Pino-Casado, R., Priego-Cubero, E., López-Martínez, C., & Orgeta, V. (2021). Subjective caregiver burden and anxiety in informal caregivers: A systematic review and meta-analysis. PloS one, 16(3), e0247143.
Dupuis, S. L., Mitchell, G. J., Jonas-Simpson, C. M., Whyte, C. P., Gillies, J. L., & Carson, J. D. (2016). Igniting transformative change in dementia care through research-based drama. The Gerontologist, 56(6), 1042–1052. https://doi.org/https://doi.org/10.1093/geront/gnv062
Fraser, K., Archibald, M., & Nissen, C. (2014). Uncovering the Meaning of Home Care Using an Arts-Based and Qualitative Approach. Canadian Journal on Aging-Revue Canadienne du Vieillissement, 33(3), 246–258. https://doi.org/10.1017/S0714980814000191
Fraser, K. and Sayah, F. (2011). Arts-based methods in health research: a systematic review of the literature. Arts & Health, 3(2), 110-145. https://doi.org/10.1080/17533015.2011.561357
Graham-Pole, J., & Lander, D. (2009). Metaphors of loss and transition: An appreciative inquiry. Arts & Health: An International Journal of Research, Policy and Practice, 1(1), 74–88. https://doi.org/https://doi.org/10.1080/17533010802527977
Haan, M. M., van Gurp, J. L. P., Knippenberg, M., & Olthuis, G. (2022). Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study. Palliative Medicine, 36(6), 994–1005. https://doi.org/10.1177/02692163221093513
Hammond, C., Thomas, R., Gifford, W., Poudrier, J., Hamilton, R., Brooks, C., Morrison, T., Scott, T., & Warner, D. (2017). Cycles of silence: First Nations women overcoming social and historical barriers in supportive cancer care. Psycho-Oncology, 26(2), 191–198. https://doi.org/https://doi.org/10.1002/pon.4335
Hanser, S. B., Butterfield-Whitcomb, J., Kawata, M., & Collins, B. E. (2011). Home-based music strategies with individuals who have dementia and their family caregivers. Journal of Music Therapy, 48(1), 2–27. https://doi.org/10.1093/jmt/48.1.2
Kidd, L. I., Zauszniewski, J. A., & Morris, D. L. (2011). Benefits of a poetry writing intervention for family caregivers of elders with dementia. Mental Health Nursing, 32(9), 598–604. https://doi.org/10.3109/01612840.2011.576801
Lang, D., & Lim, L. C. (2014). Effects of art therapy for family caregivers of cancer patients: A systematic review. JBI Database of Systematic Reviews and Implementation Reports, 12(4), 374–394. https://doi.org/10.11124/jbisrir-2014-1096
Leavy, P. (2019). Handbook of Arts-Based Research. Guilford Publications.
Lindt, N., Van Berkel, J., & Mulder, B. C. (2020). Determinants of overburdening among informal carers: a systematic review. BMC Geriatrics, 20(1). https://doi.org/10.1186/s12877-020-01708-3
Lowe, T. A., Osborne, T., & Bell, S. (2023). Remote graphic elicitation: A critical reflection on the emotional affordance and disruption management in caregiver research. Area, 55(2), 264-273. https://doi.org/10.1111/area.12846
Medicine, I. O., Services, B. O. H. C., & Americans, C. O. T. F. H. C. W. F. O. (2008). Retooling for an aging America: Building the Health Care Workforce. National Academies Press.
Miller, E., & Zelenko, O. (2022). The Caregiving Journey: Arts-Based Methods as Tools for Participatory Co-Design of Health Technologies. Social Sciences-Basel, 11(9). https://doi.org/10.3390/socsci11090396
Ophir, A., & Polos, J. (2021). Care Life Expectancy: gender and unpaid work in the context of population aging. Population Research and Policy Review, 41(1), 197–227. https://doi.org/10.1007/s11113-021-09640-z
Osman, S. E., Tischler, V., & Schneider, J. (2016). Singing for the Brain: A qualitative study exploring the health and well-being benefits of singing for people with dementia and their carers. Dementia, 15(6), 1326–1339. https://doi.org/10.1177/1471301214556291
Peters, M. D. J., Marnie, C., Tricco, A. C., Pollock, D., Munn, Z., Alexander, L., McInerney, P., Godfrey, C. M., & Khalil, H. (2020). Updated methodological guidance for the conduct of scoping reviews. JBI Evidence Synthesis, 18(10), 2119–2126. https://doi.org/10.11124/jbies-20-00167
Petts, L., & Urmston, E. (2022). An exploration into the experience of family caregivers for people living with dementia in a community dance class. Research in Dance Education, 23(1), 126–141. https://doi.org/10.1080/14647893.2021.1993175
Pollock, D., Peters, M. D. J., Khalil, H., McInerney, P., Alexander, L., Tricco, A. C., Evans, C., de Moraes, É. B., Godfrey, C. M., Pieper, D., Saran, A., Stern, C., & Munn, Z. (2023). Recommendations for the extraction, analysis, and presentation of results in scoping reviews. JBI Evidence Synthesis, 21(3), 520–532. https://doi.org/10.11124/JBIES-22-00123
Schulz, R., Beach, S. R., Cook, T. B., Martire, L. M., Tomlinson, J. M., & Monin, J. K. (2012). Predictors and consequences of perceived lack of choice in becoming an informal caregiver. Aging & mental health, 16(6), 712-721.
Tan, W. J., Lim, X. Y. H., Lee, T., Wong, S. C., Koh, H. J., & Yeo, D. (2022). Enhancing the caregiving experience of family care partners in Singapore through an arts programme for persons with dementia: an exploratory study. Aging & Mental Health, 26(10), 1942–1948. https://doi.org/10.1080/13607863.2021.2008306
Walsh, S. M., Radcliffe, R. S., Castillo, L. C., Kumar, A. M., & Broschard, D. M. (2007). A pilot study to test the effects of art-making classes for family caregivers of patients with cancer. Oncology Nursing Forum, 34(1), 38. https://doi.org/10.1188/07.ONF.E9-E16
Wharton, W., Epps, F., Kovaleva, M., Bridwell, L., Tate, R. C., Dorbin, C. D., & Hepburn, K. (2019). Photojournalism-Based Intervention Reduces Caregiver Burden and Depression in Alzheimer’s Disease Family Caregivers. Journal of Holistic Nursing, 37(3), 214–224. https://doi.org/10.1177/0898010118801636
Willert, B., & Minnotte, K. L. (2019). Informal Caregiving and Strains: Exploring the impacts of gender, race, and income. Applied Research in Quality of Life, 16(3), 943–964. https://doi.org/10.1007/s11482-019-09786-1
Yoon Irons, J., Garip, G., Cross, A. J., Sheffield, D., & Bird, J. (2020). An integrative systematic review of creative arts interventions for older informal caregivers of people with neurological conditions. PLoS One, 15, 1–25. https://doi.org/10.1371/journal.pone.0243461