##plugins.themes.bootstrap3.article.main##

Claudia Andrea Ramírez-Perdomo

Abstract

Chronic kidney disease is a public health issue due to its high incidence, morbidity, mortality, and overload of health systems. It is a disease in which renal function is progressively lost. The aim of this study was to understand the experience of people living with Chronic Renal Disease who have received a kidney transplant. I used the hermeneutic-phenomenological qualitative research method proposed by Van Manen (2014). There were 11 participants with Chronic Renal Disease in this study. The main theme that emerged was the experience of living with chronic kidney disease. I grouped sub-themes as the existential lifeworld of: (a) Relationality: feeling stuck, Terminal Chronic Renal Failure and support; (b) Temporality: something unexpected, being present and not seeing it, being young and sick; (c) Corporeality: body deterioration and changes in sex life; (d) Materiality: the effects on the economic status; and (e) Spatiality: changes in life, sadness, and depression. This study represents an important tool for the development of self-care models articulated within public health policies aimed at caring for people with Chronic kidney disease.

##plugins.themes.bootstrap3.article.details##

Section
Empirical Articles

How to Cite

Claudia Andrea Ramírez-Perdomo. (2020). The Experience of Living With Chronic Kidney Disease. New Trends in Qualitative Research, 1, 122–138. https://doi.org/10.36367/ntqr.1.2020.122-138
References

Al Nazly, E., Ahmad, M., Musil, C., & Nabolsi, M. (2013). Hemodialysis stressors and coping strategies among Jordanian patients on hemodialysis: A qualitative study. Nephrology Nursing Journal, 40(4), 321–327. https://doi.org/10.1080/13548506.2014.952239

Algarra, A., Salazar, N., Parra, K., da Cruz, V., Tagliamento, G., & Wanderbroocke, A. C. (2016). The maintenance of work life by chronic kidney patients in hemodialysis treatment: An analysis of the meanings of work. Revista de La Sociedad Espanola de Enfermeria Nefrologica, 25(2), 154–163. https://doi.org/10.1590/S0104-12902016155525

Caldas, C. P., & Berterö, C. (2012). A concept analysis about temporality and its applicability in nursing care. Nursing Forum, 47(4), 245–252. https://doi.org/10.1111/j.1744-6198.2012.00277.x

Calvey, D., & Mee, L. (2011). The lived experience of the person dependent on haemodialysis. Journal of Renal Care, 37(4), 201–207. https://doi.org/10.1111/j.1755-6686.2011.00235.x

Campos, C, & Turato, E. (2010). Tratamento hemodialítico sob a ótica do doente renal: estudo clínico qualitativo [Hemodialysis treatment as perceived by the renal patient: clinical qualitative study]. Journal Brazilian de Enfermagem, 63(5), 799–805. http://dx.doi.org/10.1590/S0034-71672010000500017

Chatrung, C., Sorajjakool, S., & Amnatsatsue, K. (2015). Wellness and religious coping among Thai individuals living with chronic kidney disease in Southern California. Journal of Religion and Health, 54(6), 2198–2211. https://doi.org/10.1007/s10943-014-9958-4

Chiaranai, C. (2016). The lived experience of patients receiving hemodialysis treatment for end-stage renal disease: A qualitative study. Journal of Nursing Research, 24(2), 101–108. https://doi.org/10.1097/jnr.000000000000010

da Cruz, V., Tagliamento, G., & Wanderbroocke, A. (2016). A manutenção da vida laboral por doentes renais crônicos em tratamento de hemodiálise: Uma análise dos significados do trabalho [The maintenance of work life by chronic kidney patients in hemodialysis treatment: an analysis of the meanings of work]. Saúde e Sociedade, 25(4), 1050–1063. https://doi.org/10.1590/s0104-12902016155525

de Carvalho, M., Moreira, M., & Nunes, C. (2012). Estágios do pesar nos discursos de jovens em tratamento renal substitutivo [Stages of grief in the discourse of young people in renal replacement therapy]. Revista Enfermagem, 20(2), 203–208. https://www.e-publicacoes.uerj.br/index.php/enfermagemuerj/article/view/4052

dos Santos, F. K., & Valadares, G. (2013). Conhecendo as estratégias de ação e interação utilizadas pelos clientes para o enfrentamento da diálise peritoneal [Investigating the action and interaction strategies that patients use to cope with peritoneal dialysis]. Escola Anna Nery, 17(3), 423–431. https://dx.doi.org/10.1590/S1414-81452013000300004

Ene-Iordache, B., Perico, N., Bikbov, B., Carminati, S., Remuzzi, A., Perna, A., & Remuzzi, G. (2016). Chronic kidney disease and cardiovascular risk in six regions of the world (ISN-KDDC): A cross-sectional study. The Lancet Global Health, 4(5), e307–e319. https://doi.org/10.1016/S2214-109X(16)00071-1

Finlay, L. (2002). Negotiating the swamp: the opportunity and challenge of reflexivity in research practice. Qualitative Research, 2(2), 209–230. https://doi.org/10.1177/146879410200200205

Gill, P. (2012). Stressors and coping mechanisms in live-related renal transplantation. Journal of Clinical Nursing, 21(11–12), 1622–1631. https://doi.org/10.1111/j.1365-2702.2012.04085.x

Gullick, J., Monaro, S., & Stewart, G. (2016). Compartmentalising time and space: A phenomenological interpretation of the temporal experience of commencing haemodialysis. Journal of Clinical Nursing, 26(21- 22), 3382-3395. https://doi.org/10.1111/jocn.13697

Heidegger, M. (1974). Being and time. (F. de cultura Economica, Ed.) Fondo de Cultura Económica.

Kazemi, M., Nasrabadi, A., Hasanpour, M., Hassankhani, H., & Mills, J. (2011). Experience of Iranian persons receiving hemodialysis: A descriptive, exploratory study. Nursing & Health Sciences, 13(1), 88–93. https://doi.org/10.1111/j.1442-2018.2011.00586.x

Lam, L. W., Lee, D., & Shiu, A. (2014). The dynamic process of adherence to a renal therapeutic regimen: Perspectives of patients undergoing continuous ambulatory peritoneal dialysis. International Journal of Nursing Studies, 51(6), 908–916. https://doi.org/10.1016/j.ijnurstu.2013.10.012

Lin, C., Chen, M., Hsieh, H., & Chang, S. (2013). Illness representations and coping processes of Taiwanese patients with early-stage chronic kidney disease. Journal of Nursing Research, 21(2), 120–128. https://doi.org/10.1097/jnr.0b013e3182921fb8

Lin, C., Han, C., & Pan, I. (2015). A qualitative approach of psychosocial adaptation process in patients undergoing long-term hemodialysis. Asian Nursing Research, 9(1), 35–41. https://doi.org/10.1016/j.anr.2014.10.007

Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. SAGE.

McQuoid, J., Welsh, J., Strazdins, L., Griffin, A. L., & Banwell, C. (2015). Integrating paid work and chronic illness in daily life: A space-time approach to understanding the challenges. Health and Place, 34(2015), 83-91. https://doi.org/10.1016/j.healthplace.2015.04.001

Monaro, S., Stewart, G., & Gullick, J. (2014). A “lost life”: Coming to terms with haemodialysis. Journal of Clinical Nursing, 23(21–22), 3262–3273. https://doi.org/10.1111/jocn.12577

Nagpal, N., Boutin-Foster, C., Melendez, J., Kubiszeswki, P., Uehara, K., Offidani, E., Faussett, Z., Chen, R., Redel, C., Waltrous, C., & Smith, B. (2017). Experiences of patients undergoing dialysis who are from ethnic and racial minorities. Journal of Renal Care, 43(1), 29–36. https://doi.org/10.1111/jorc.12185

Niu, H., & Liu, J. (2017). The psychological trajectory from diagnosis to approaching end of life in patients undergoing hemodialysis in China: A qualitative study. International Journal of Nursing Sciences, 4(1), 29– 33. https://doi.org/10.1016/j.ijnss.2016.10.006

Palmer, S. C., Hanson, C. S., Craig, J. C., Strippoli, G. F. M., Ruospo, M., Campbell, K., Johnson, D. W., & Tong, A. (2015). Dietary and fluid restrictions in CKD: A thematic synthesis of patient views from qualitative studies. American Journal of Kidney Diseases, 65(4), 559–573. https://doi.org/10.1053/j.ajkd.2014.09.012

Patton, M. Q. (2002). Qualitative evaluation methods and research methods. SAGE.

Sabanciogullari, S., Yilmaz, F., Gngr, F., Sylemez, S., & Benli, R. (2015). Sexual function in patients with chronic renal failure on hemodialysis and its effects on patients’ perception of health and life satisfaction. Sexuality & Disability, 33(2), 175–186. https://doi.org/10.1007/s11195-015-9398-4

Saunders, M. R., Kim, S. D., Patel, N., Meltzer, D. O., & Chin, M. H. (2015). Hospitalized patients frequently unaware of their chronic kidney disease. Journal of Hospital Medicine, 10(9), 619–622. https://doi.org/10.1002/jhm.2395

Schaepe, C., & Bergjan, M. (2015). Educational interventions in peritoneal dialysis: A narrative review of the literature. International Journal of Nursing Studies, 52(4), 882–898. https://doi.org/10.1016/j.ijnurstu.2014.12.009

Van Manen, M. (2014). Phenomenology of practice: meaning-giving methods in phenomenological research and writing. Left Coast Press.