Mother’s Perception of Autistic Children on Isolation Motivated by the Pandemic of Covid-19
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Abstract
The covid-19 pandemic created an anxiogenic context for autistic people. Objective: To analyze the effects of social isolation associated with pandemic control on the lives of family caregivers of autistic children. Method: This is a qualitative research carried out from April to May 2020, with 14 mothers aged between 28 and 47 years and a father aged 34 years. Data collection was carried out through semi-structured interviews carried out by digital means. Data were analyzed according to thematic content analysis, based on the paradigm of Neurodiversity. Results: Three categories emerged from the analysis process: magnification of gender issues during the pandemic, concerns related to the child's therapeutic process, and resilience and religiosity. Conclusion: It is concluded that the pandemic potentiated gender inequalities, culminating in the physical, psychological and emotional wear of these women. Linked to these issues, the concern with damage to the development of children emerges. These anxieties amplify the self-responsibility of these women, culminating in a feeling of guilt that finds support in religiosity as the main coping strategy.
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Almeida, M., Shrestha, A. D., Stojanac, D., & Miller, L. J. (2020). The impact of the COVID-19 pandemic on women’s mental health. Archives of Women’s Mental Health, 23(6), 741–748. https://doi.org/10.1007/s00737-020-01092-2
Amar, J. A., González, M. M., & Utria, L. U. (2013). Nuevo abordaje de la salud considerando la resiliencia. Revista Salud Uninorte, 29(1), 124–133. http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-55522013000100014
Amorim, R., Catarino, S., Miragaia, P., Ferreras, C., Viana, V., & Guardiano, M. (2020). The impact of COVID-19 on children with autism spectrum disorder. Revista de Neurologia, 71(8), 285–291. https://doi.org/10.33588/RN.7108.2020381
Baron-Cohen, S. (2017). Editorial Perspective: Neurodiversity – a revolutionary concept for autism and psychiatry. In Journal of Child Psychology and Psychiatry and Allied Disciplines (Vol. 58, Issue 6, pp. 744–747). Blackwell Publishing Ltd. https://doi.org/10.1111/jcpp.12703
Bialer, M. (2015). A inclusão escolar nas autobiografias de autistas. Psicologia Escolar e Educacional, 19(3), 485–492. https://doi.org/10.1590/2175-3539/2015/0193876
Chaves, L. J., & Gil, C. A. (2015). Older people’s concepts of spirituality, related to aging and quality of life. Ciência & Saúde Coletiva, 20(12), 3641–3652. https://www.scielosp.org/pdf/csc/v20n12/en_1413-8123-csc-20-12-3641.pdf
Colizzi, M., Sironi, E., Antonini, F., Ciceri, M. L., Bovo, C., & Zoccante, L. (2020). Psychosocial and behavioral impact of COVID-19 in autism spectrum disorder: An online parent survey. Brain Sciences, 10(6). https://doi.org/10.3390/brainsci10060341
Courtenay, K., & Perera, B. (2020). COVID-19 and people with intellectual disability: Impacts of a pandemic. Irish Journal of Psychological Medicine, 37(3), 231–236. https://doi.org/10.1017/ipm.2020.45
Fontanella, B. J. B., Luchesi, B. M., Saidel, M. G. B., Ricas, J., Turato, E. R., & Melo, D. G. (2011). Amostragem em pesquisas qualitativas: Proposta de procedimentos para constatar saturação teórica. Cadernos de Saude Publica, 27(2), 389–394. https://doi.org/10.1590/s0102-311x2011000200020
Lopes, B. A. (2019). Não Existe Mãe-Geladeira Uma análise feminista da construção do ativismo de mães de autistas no Brasil [Universidade Estadual de Ponta Grossa]. http://tede2.uepg.br/jspui/handle/prefix/2922
Lopes, B. A. (2020). Autism, maternal narratives and activism from 1970to 2008. In Revista Brasileira de Educacao Especial (Vol. 26, Issue 3, pp. 377–392). Associacao Brasileira de Pesquisadores em Educacao Especial. https://doi.org/10.1590/1980-54702020v26e0169
Lord, C., Elsabbagh, M., Baird, G., & Veenstra-Vanderweele, J. (2018). Autism spectrum disorder. In The Lancet (Vol. 392, Issue 10146, pp. 508–520). Lancet Publishing Group. https://doi.org/10.1016/S0140-6736(18)31129-2
Minayo, M. C. (2014). O desafio do conhecimento: pesquisa qualitativa em saúde. São Paulo: HUCITEC (1a). Hucitec.
Ortega, F. (2009). Deficiência, autismo e neurodiversidade. Ciência & Saúde Coletiv, 14(1), 67–77. https://scielosp.org/pdf/csc/2009.v14n1/67-77/pt
Lei No 12.764, de 27 de deazembro 2012, (2012) (Presidência da República, Casa Civil, & Subchefia para Assuntos Jurídicos). http://www.planalto.gov.br/ccivil_03/_ato2011-2014/2012/lei/l12764.htm
Vinuto, J. (2014). A amostragem em bola de neve na pesquisa qualitativa. Tematicas, 22(44), 203–220. https://doi.org/10.20396/tematicas.v22i44.10977
WHO (2021). COVID-19 Strategic Preparedness and Response Plan (SPRP 2021) (World Health Organization, Ed.). World Health Organization. https://www.who.int/publications/i/item/WHO-WHE-2021.02
Zanello, V. (2020). Saúde Mental, Gênero e Dispositivos: Cultura e Processos de Subjetivação - Valeska Zanello - Google Livros (1a). Editora Appris.