The Adaptation Experience of Mothers of Children and Adolescents with Cerebral Palsy: A Qualitative Study

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Cover of Volume 8 of New Trends in Qualitative Research (NTQR) journal
PDF (Português (Portugal))
Published Jul 8, 2021
DOI https://doi.org/10.36367/ntqr.8.2021.645-653

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Inês Mimoso
Faculdade de Psicologia e de Ciências da Educação, Universidade de Coimbra, Portugal


Luciana Sotero
Centro de Estudos Sociais, Faculdade de Psicologia e de Ciências da Educação da Universidade de Coimbra, Portugal


Ana Isabel Cunha
Departamento de Psicologia e Educação, Universidade da Beira Interior, Portugal


Juliana Queiroz
Centro de Ciências Biológicas e da Saúde, Universidade do Estado do Pará, Brasil


Abstract

Cerebral palsy (CP) is one of the most common chronic pediatric conditions worldwide, raising multiple challenges on the family, particularly, on mothers, who assume most of the care that the child needs. Nevertheless, despite the demands associated with the care of the child, the literature has been showing that parents also have the competence to face adversity. Goals: Understand the experience of these mothers, exploring the factors that, in their perception, contribute to a positive adaptation. Methods: A qualitative study was conducted, using semi-structured interviews, with six mothers of children/adolescents with CP. The present data were analysed using a thematic analysis. Results: Five major themes were identified that highlight important factors for the adaptation: (1) intrafamily cooperation; (2) support network; (3) perception of competence; (4) put the PC “in its place”; e (5) maintenance of a positive outlook. Conclusions: The identification of these themes allows us to highlight the strengths and resources associated with an adaptive trajectory of mothers of children/adolescents with CP, translating into clues for clinical intervention and a starting point for future investigations.

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Issue
Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges (Book Series)
Section
Empirical Studies with Methodological Reflection

How to Cite

Inês Mimoso, Luciana Sotero, Ana Isabel Cunha, & Juliana Queiroz. (2021). The Adaptation Experience of Mothers of Children and Adolescents with Cerebral Palsy: A Qualitative Study . New Trends in Qualitative Research, 8, 645–653. https://doi.org/10.36367/ntqr.8.2021.645-653
Copyright
Creative Commons License

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

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