Itinerário terapêutico de famílias de crianças com deficiência à luz do modelo teórico dos sistemas de cuidados à saúde

Abstract

Introduction: The trajectory of family members when looking for care services for disabled children may influence their integral care. Goals: To know the performance of the professional subsystem in the health care for disabled children. Methods: Qualitative research, developed in rehabilitation services located in Ceará, Brazil. In this study, 41 family members of children with disabilities participated, through an interview. The results were processed using the similitude analysis technique from the IRaMuTeQ software and analysed by the professional subsystem of Health Care System model by Arthur Kleinman. The research was in accord with the recommended ethical precepts. Results: Following the Therapeutic Itinerary, family members accessed the professional subsystem in order to have care in specialized care, in a path marked by difficulties related to the provision of health and education services, and to the absence of a specific care line. The participation of professional education institutions in offering rehabilitation and specialized consultation activities was revealed. Conclusions: The professional subsystem of the Therapeutic Itinerary resulted in losses to access, equity, comprehensiveness and effectiveness of care for children with disabilities.