Reconstruction of Daily life: The Lived experience of the post-family caregiver
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https://orcid.org/0000-0001-7969-8242
Luisa D’ESPINEY
https://orcid.org/0000-0002-9018-0134
Abstract
Contextualization/Justification: Thinking about the post-family caregiver is recognizing the complexity inherent to the trajectory of care. Although the experience of caring has been widely explored, little is known about the experience of the post-caregiver, the reconstruction of their daily life is essential to understand the resumption of life of the family’s post-caregiver.
Goal: This investigation started from the question: What is the post-caregivers’ experience in the reconstruction of their daily life? It aims to understand the post-caregivers' experience in the reconstruction of their daily life. This study is based on a phenomenological methodology with an interpretive design embedded in the Interpretative Phenomenological Approach. The eleven participants had been previously accompanied by an Integrated Continuous Care Team.
Organization: An in-depth, unstructured interview was conducted, enabling participants to share significant moments after the decease of the person they had taken care of and to share how they reconstruct their daily life. The phenomenon of reconstruction daily life of this participants' is revealed in the dynamic of the simultaneous relationship: with the past, recalling what was experienced, with the present, in the recognition of the self as well as in their continuous response as they return to the world and to life and, with the future, envisioning an imaginary of challenges and uncertainties. It is in everyday life that participants are reconnected with themselves, with others and with the world.
Final Considerations: Through this study, nurses will be able to access the lived experience of these post-caregivers and to challenge themselves in the way they provide care, valuing the expertise to pay attention, improving their intervention in presence. The Integrated Continuous Care Teams in the Community Care Units could be challenged to strengthen support networks for family’s post-caregivers in cooperation with other partners and social resources.
Keywords: Life Experiences [MeSH and DeCS], Phenomenology[MeSH and DeCS], Nursing [MeSH and DeCS], Post- Familily Caregiver (Ke yword), Daily Life (Keyword)
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